MISOPHONIA UK
 
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Comments

Lesley
10/12/2010 13:18

I think this site is useful in that a sufferer can show it to their friends and family and then there is a greater understanding but I also feel that it could make sufferers feel worse about their condition as all of the stories are very negative and probably only show what it's like for a very small number of people who have a very bad level of the condition. I have read that misophonia is very rare and there is no cure (it may not have been on this site) but I have heard of lots of people who have it on varying levels and with most of them it got better or did not become a massive problem. I think this is definitely something that can be overcome as it wasn't there in the first place. I am already managing quite well with CBT and I've only been trying it for 2 days. I know it may take a long time but I also know that I will get over it. I'm also bothered by visual things as well as sound so I definitely don't think it's a problem with my hearing like some people believe. A phobia is a conditioned response which can be very strong and it is possible to overcome them.

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ellen
03/15/2012 19:03

its strange that you added in about the phobia , misophonia is not a phobia.

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05/18/2012 20:49

it sure is a phobia a phobia is when you hate or are scared of it ,hun it is a phobia

Guy, Misophonia UK
10/12/2010 14:49

Dear Lesley

Thank you for writing in our guest book. I welcome your contribution. However, I couldn’t let some of your observations slip by with adding a comment of my own.

“I... also feel that it could make sufferers feel worse about their condition as all of the stories are very negative and probably only show what it's like for a very small number of people who have a very bad level of the condition.”

I personally don’t think all the stories are “very negative”. There are many messages of hope in there. I don’t know where you get “very small number of people” from but, I can tell you that substantial numbers of people have “a very bad level” of the condition. Misophonia UK is primarily for them. By definition, if misophonia is not such a problem for you, you won’t need the site so much.

“I have read that misophonia is very rare and there is no cure (it may not have been on this site) but I have heard of lots of people who have it on varying levels and with most of them it got better or did not become a massive problem.”

You are right. There is currently no known cure for misophonia. But, again, what do you mean by “very rare”? The plain fact is that the epidemiological research simply hasn’t been done for a definitive figure to be known.

However, what I can tell you is that, on average, 50 new people a day log on to Misophonia UK, and have been doing for the past eight months. Assuming that a majority of those people have the condition, rather than simply a (passing) interest in it, I do not think there is any way that can be characterised as very rare!

I‘d love to know who all these people are who “got better”. They certainly don’t make themselves known to Misophonia UK! To some extent, this is all circular reasoning, because, by definition, if misophonia is not that bad, then it is not clinical misophonia.

“I think this is definitely something that can be overcome as it wasn't there in the first place. I am already managing quite well with CBT and I've only been trying it for 2 days. I know it may take a long time but I also know that I will get over it.”

If you manage a complete remission from misophonia, then that will be fantastic and I wish you the very best. Perhaps you will be able to come back and share your experiences with us. However, many people with crippling misophonia have tried many different therapies with limited or no success. It would be great if you could share with us the form your CBT is taking.

“I'm also bothered by visual things as well as sound so I definitely don't think it's a problem with my hearing like some people believe. A phobia is a conditioned response which can be very strong and it is possible to overcome them.”

You may well be right that misophonia is at heart not simply a hearing condition, but that is the medical diagnosis we currently have to work with. The message is that we need more research. You imply that misophonia is a phobia. This is not how it is classified medically and, again, we need more research to know about its aetiology (cause).

Feel free to comment on these responses.

Best wishes

Guy
Misophonia UK

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Ellen Henderson
01/19/2012 00:19

lol lol lol Guy I like you , you shot that person down , but politly they don't know what theyre on about.

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Ana
03/04/2012 22:32

I agreed with what you said to her. Also i strongly think that misophonia is not something that you can control within a matter of days. From what i have read from forums,people online and from my own experience, therapy and drugs do not help. Also, Anxiety Disorder can probably feel like misophonia, as can other conditions as well.

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LYNN
03/11/2012 13:19

hi guy great to find you,isuffer real badand thought it was me me me,but i was wondering has anyone tried hypotist or the like and has it worked ,iam thinking of going that way but it is very expensive so could do with some advise

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Carly
10/19/2010 07:00

I have hated sniffing since probably around 10 or 11 years old. I am really happy that there are other people like this out there!!

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Smack
11/01/2010 10:17

May I offer anyone a peice of gum? OMG...could you imagine? A room full of people chewing gum! I'm glad to know that it's not just me and my family that have this problem. I've always wondered if it was genetic or a learned behavier. There are times when I'm eating with someone when I catch myself trying to listen to hear if they are making noise while they eat, then get annoyed when they are. Why would I deliberately try to listen to something that's going to annoy me?! So crazy....as I'm writing this I hear one of my dogs licking his self. My dogs eat like pigs and it doesn't bother me at all.....

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05/18/2012 20:51

omg thank you!! now i no im not alone

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11/14/2010 07:29

Hi Guy,

Thank you so much for the wonderful work you keep on doing for misophonia sufferers. This website is very professional en well thought about. You keep on adding new information to it. Your latest edition with the misophonia scale on it has been an eye opener for me as well as a support. Keep on doing the good work!
In Holland a student psychiatrist is very intersted in misophonia and says he treated 2 sufferers which resulted in a significant improvement of their symptons. I'm still waiting for his reply on my question what the treatment was. I also refered him to your website.
Nowhere on the internet is such a lot of information gathered about misophonia.
Again, thanks a lot for everything your doing!
Best wishes from Catharina Walta

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Anonymous
12/12/2010 19:42

wow, i just checked out your scale, and I'm definitely at level 10 (though i've never hurt someone else or an animal, only myself).

glad you have a site focused on awareness, and a name for this disgusting disease that penetrates anger throughout my life and ostracizes me from the world. i would love to find a reason why i suffer this someday before i die, and hopefully someone will find a cure so other people don't have to go through this. as scott said in his video, i wouldn't wish this on my worst enemy.

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Jerome Wodson
01/06/2011 17:34

After having to excuse myself again from a family dinner, for fear of yelling at someone. I turned to the magical interweb for support and lo, there is an actual condition for how I feel, and this great website. I feel so much more at ease now. Maybe my mother will stop laughing at me and telling me to grow up (I am 31).Thanks and keep up the good work....

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ellen henderson
01/19/2012 00:54

My mum used to yell at me to ignore it.I would always yell back "never thort of doing that , thnx i'm magicaly cured" .

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Jennifer
02/10/2011 21:05

Hi: I definitely have misophonia. I have sufffered with this since the age of 12 or maybe even younger. I just found the name of the diagnosis tonight and it has brought great relief already. I have talked to my husband and my two sons. I think I will go buy some ear plugs tomorrow and see if I can bring myself and my family some relief. Thank you so much for this website and its awareness. I can't wait to tell my sister. She has Misophonia too. So, does that suggest that this is most likely neurological since it can obviously be hereditary too?

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Victoria
02/03/2012 11:02

I have just found this website and the actual name for the condition I have suffered through for almost 50 years. Hallelujah !! Jennifer, my younger sister suffers from it also. I have always thought that i "trained" her to be like me. I was 6 years old when I first noticed the snoring of my dad way down the hall in his room. Then came gum chewing/cracking.. Now I have a long list of things that get me so frustrated that I could just scream out and cry non-stop. My husband still laughs at me and I cannot wait to show him this website.

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Trish
02/14/2011 16:10

I, like the rest of you have noticed this all started around 10-12yrs old. I find this website has helped inform me of the symptoms and possibly coping methods. Which is important as I live in NZ and can't find any Clinical Psychologists in Christchurch who will help me cause they don't know about it.

I'm willing to try anything within reason. My problem is I hate typing sounds amongst other noises (at the moment someone in the office has a sore throat is constantly clearing it, makes me want to punch her)and I work in an office!(everyone in the office knows of my problem but they do not seem inclined to help or try to make it bearable for me).

My iPod has helped a little but it is very unprofessional and I can't always hear someone when the want to talk to me,even though I have it turned low. Ear plugs don't block the noise out enough for me.

Just before Christmas I decided I did not want to just cope anymore, really it can't be good to be stressed 8 hours a day, 5 days a week or feel like wanting to quite, I like my job and the people. Its very difficult though not to hate someone because of the noises they make. My BF thinks its a load of fun and teases me about it to, sigh.

I will keep pressing on though, even if I have to wait till I come back to the UK in a few years time.

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Ellen henderson
01/19/2012 01:03

I'm from nz aswell also a suffer of misophonia.There is nothing for people with this in nz.I want to start an awareness day thing like they have in the u.k it upsets me to know that so many people out there are thinking that they are messed up and alone ( myself included. found out last night its a real thing) .So many people have this and theres no help. Though I've found actupuncture to be the only thing that has ever taken the edge off.But its not permanent.

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shell
03/05/2011 08:38

I am 40 this year and have suffered all of my life I suffered a stroke just over a year ago and it has made this condition worse I feel as though I hear everything The nextdoor neighbours tv, even her coughing, the fridge freezer...The worst for me are just the noises of others what I call wasting energy, tapping themselves or pens, whistling!!omg! humming or singing....WHY?? what is wrong with peace and quiet

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thomas b holmes
03/23/2011 11:46

I have been at leval 10 since 1960!I have pelted a dod with lemons, kidnaped several dogs and transported them 100 miles away,Threatned to kill gum snappers,prohibited children to have rattles, bells or noise makers of any sort,Fired an employee for cracking gum, consitered haveing my eardrums removed and consitered suicide for a long time!

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ellen henderson
01/19/2012 01:11

I wish it was legal for doctors to remove the ear drums of suffers.To be deaf would be absolute bliss.

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tom holmes
03/23/2011 11:52

The guy who claimes progress in 2 days is not aware of the potential depth of this problem!

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Paul
04/29/2011 07:54

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paul
05/04/2011 07:43



As a self diagnosed misophonia sufferer( trying to get an official diagnosis ) I was curious to know whether the following also applies;

An obsession with keeping quiet yourself in case neighbours hear and 'retaliate' causing me to suffer even more. The condition is so life controlling and encompasses every aspect of my day( and even night) is ruled by it.

I can be sat in the living room listening to someone make a hot drink in the kitchen and know whether they are stirring tea or coffee because there Is a subtle difference in the sound they both make!

I am fairly certain it is a family trait as all I can remember of my father is the way he used to make a pot of tea every morning and manage to stir it without clanking the spoon on the inside of the pot!

Now it seems my son has it too !

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Katherine
06/05/2011 19:26

This website has completely changed me. It's funny how knowing that one is clinically crazy, and not regular crazy, can change one's outlook. After hurting so many people, and pushing so many away, the feeling that there are people out there who understand is so acutely compellling.
Thank you. A thousand times, thank you. To everyone else out there who suffers as I do, just remember that we are united. I believe that one day, there will be peace for us. Until then, we will stick together.

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ellen henderson
01/19/2012 01:20

can you imagine a world with a movie theatre for people with misophonia and exam halls suited for us, and where people would understand if you said "I have misophonia , please excuse me I have to leave now, but do come and get me when you've finished eatting."

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susanne
06/15/2011 05:00

hello, my name is Susanne.
I am seventeen years old, and I have misophia for the last 3-4 years.
I am sorry, but mu Englisch is bad.
I come from the Netherlands.
and i don´t know what too do whit this..
don´t know to dealin misophonia!

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Dave
06/24/2011 13:16

Just found out that my crazy pet peeve is actually a medical condition today. My noises are chewing, breathing, and sucking/smacking. Whats weird is how specific it is to only humans. My brother used to run in my room every Saturday morning, sit behind me, and eat cereal while I was on the computer. I would always kick him out with anger. One day, he came in and I could here him smacking his cereal, I turned around to kick him out, turns out it was my dog with a mouthful of food, all the sudden there was no more rage. In fact, I find animal chewing noises kind of adorable. I'm an extremely rational and unemotional person, yet somehow, these noises somehow flip a switch in my brain.

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Sarah
06/28/2011 20:20

I never actually went to the trouble to diagnose myself until recently, because I've had to deal with OCD and germaphobic tendencies for my whole life, too, and most people tended to focus on that. But I have a big family with an unsanitary house, and they get sick a lot. I'm 17, and I stay in my room all day, because if I leave I'll hear them cough or talk with their mouth full and start freaking out. The whole thing is just really messed up, and I'm glad this website is here to show us that we aren't alone!

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Ally
06/30/2011 15:14

Hi there,

I read an article in the health supplement of the Irish Times the other day and it was unreal how much of it rang true for me. I have always been unnaturally annoyed by noises in particular eating noises and for some reason in particular when I'm on public transport as I feel there is no escape and I really feel like screaming at the person. My triggers also include lots of the common ones I've read about here including sniffing, coughing, people clearing their throat, people eating cereal and scraping the bowl, eating loud or eating crunchy food and chewing gum,hearing the TV when I'm in the next room, any noise at all when I'm trying to sleep. These are just some of the ones I can think of right now.

Finally I have two questions which I would be interested to hear peoples opinions on:

I wear ear plugs a lot - mostly at night to block out ambient noise from the next room etc and wonder could I be doing myself more harm than good as I'm not allowing myself to adjust to hearing these ambient noises? I feel the alternative would be actually losing the plot with anger/frustration but am also worried that I'm actually increasing my sensitivity by constantly blocking out the noise.

Secondly (and this part is directed at female sufferers), do many/any women out there find their triggers/sensitivities increase when they are pre-menstrual?

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ellen henderson
01/19/2012 01:27

First question: I feel that if wearing ear plugs work for you then wear them .anything that decreases your stress level is good for you right?.A good night sleep always make my fuse longer.
Second question: yes having ur period makes it worse but I think just because if you already feeling crummy your fuse is shorter.

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Clair
07/28/2011 04:04

Ever since I was about 11 (about when I hit puberty--probably not long before, actually), I have had this absolute DISGUST for noises that are associated with people eating. My immediate family (of 5) makes fun of me for it whenever the subject is brought up. My little sister is the only one who has not used it to humiliate and irritate me. I knew that I couldn't be the only one to suffer from this horrible plight, but I'd never heard of anyone else with the problem until high school. Someone at church hated tapping as much as I hated chewing, and her father said he'd heard it was a mild form of autism. Around the same time (I can't remember if it was before or after) I found out that my maternal great aunt despises chewing as much as I do.

What frustrated me most was that I never had a name to the culprit that plagued me. Was it a particular for of OCD? Was it like my friend's father had said, a mild form of autism? Was it caused by a physical problem with the brain or hormones? I didn't know. Then something happened to change that a couple nights ago. I was reading an article on Cracked.com about personality quirks that are actually mental disorders when I got to #2 on the list: Misophonia. My jaw just about dropped when I realized that this was it! THIS is what I have! I showed my mom this article and talked to her about it, and she basically laughed it off. I talked to her AND dad, and they both laughed me off (especially when I mentioned reading up on it in a /wikipedia/ article on Misophonia). I know that they'll never stop laughing at what /they're/ sure is an over-reaction to what must be a simple pet-peeve, but I know /you/ know it's more than that. It's not someone writing "there" instead of "they're"; it's not someone cutting you off in traffic (though it's close); it's primal and anguishing and looming.

The fact that I can read about how others understand this... it's uplifting, especially when I have a family who (except my little sister) more or less treats mental diseases that aren't as sever as schizophrenia like their only ever excuses.

So, "thank you" to those who have shared your experiences.

I also want people who think they are finding the answer after all this time to know this:
You can't describe the loathing and disgust that is within you because you have never rationally felt it in any other situation. It's just /noise/, but it is the /enemy/.

And there are people who also know that uncontrollable feeling, so stay strong.

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Nadia
08/07/2011 00:15

Once my mind was rejecting the sound of someone chewing in the kitchen. I checked who was doing this noise and it was the cat. The rage stopped. Not more blame. This helped me to understand that the intolerance I was experiencing was not towards the sound. It was more a need to place a blame, due maybe to unsolved resentments. I find interesting that the triggering sounds are so similar among the people with this type of syndrome.
I was hoping to read at least a couple of stories in this website of people who are no longer reacting to noises. This is not the case.
What to do? I would like to be able to sustain a kind of distance towards the sensations and thoughts related to this intolerance. A belief that it is just a part of my mind who is doing this and me being aware of it. Since it is not me, then it makes sense that I cannot control the reaction. So, yes, strength and patience, in order to gain (receive?)serenity.

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ellen henderson
01/19/2012 01:38

I have the same thing with animals eating, but for me it seems if I can't fix the noise then I'm not botherd by it (eg. cant tell the cat to chew with it mouth shut) .But the things I can change drive me insane untill I've either left the room or got it/them to stop.

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Andrew
08/07/2011 13:30

I'm 48 years old and have suffered from this for more than 40 years. I went to my docter about 30 years ago and was sent to a pychologist - waste of time. I've just discovered the term misophonia.

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Stephanie
09/08/2011 06:16

Thank you so much for this website.
It has significantly helped me understand this condition that I have been dealing with. I have only recently begun to notice that in the past 2 years, certain sounds like my father chewing at the dinner table just enrages me.

My mom would always claim that I had no patience and needed to be more courteous to others and stop 'glaring' at my Dad at dinner. Now I understand what I am going through when I experience these feelings.

I'm 20 now, and knowing/understanding misophonia will help me deal with its effects in the future.

I am also thankful for all of the resources available here and I hope to explain to my parents how their certain noises and behaviors affect me.

Thank you!

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Caroline
09/08/2011 08:40

This website may have just changed my life.

I've always felt like a freak because I can't stand it when people chew gum. Even thinking about it makes me want to plug my ears. It's been practically unbearable since I was about 11 or 12. Many of my relationships have suffered because of this, and I was always a social outcast through middle and high school because I was so preoccupied and stressed by the ever-present gum chewers.

I feel such a profound sense of relief to know that there's a name for what I have, and that many other people know what I'm going through. I feel like this weight has just lifted off my chest.

Thank you so, so much for creating this website!

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Deborah
09/09/2011 09:55

I am a 47 year old female who has suffered with this condition since I was a child. It has progressively gotten worse each year, since I developed it. My father and younger brother also suffered with this and I believe that it's genetic. How is it that today is the first time I have ever heard the term misophonia? I have been seeking a diagnosis from medical as well as mental health professionals for years; they've all just looked at me like as though I was nuts and not a one ever took my complaints seriously. Now that I actually know what I have, maybe I can finally find someone or something that will help me, before I completely lose my mind once and for all.

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lenee
09/10/2011 08:27

So nice to know I'm not alone. Reading these are amazing. Sounds just like me. My biggest triggers are eating related, but also pen clicking, feet tapping and basically any unnecessary noises people make irritate me. Movie theaters are painfull. It's so hard to focus on the movie when there is popcorn, nachos, gum popping, candy wrappers and wispering goin on. I just feel relieved to know that I'm not just a crazy bitch to my family and friends for no reason!

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Elisabeth
09/10/2011 16:14

Earlier this week when I was reading the news online, I ran across the following headline from the New York Times: "When a Chomp or a Slurp Is a Trigger for Outrage." What a tremendous relief it was to see that there is a term for the condition I've dealt with for so long! Misophonia! It has also been a tremendous relief to know that I'm not alone in this struggle.

I have suffered from misophonia since I was a "tween" when my brother pointed out another brother's chewing sounds at the dinner table. Chewing sounds are definitely my worst trigger, but they are hardly the only one.

I am grateful to have a husband who has been so incredibly patient and accommodating over the years, but even he at times (understandably) becomes frustrated with my intolerance for noises. We have to eat dinner with the television on and with me at a safe distance from him so that I don't hear him chewing. When I go to sleep at night, if he stays in the next room watching television, he has to turn down the volume - or better yet, turn it off altogether - because I find the sound distressing.

One thing that is particularly interesting to me, and certainly frustrating, is that these various noises still bother me so much despite progressive hearing loss over the years as a result of otosclerosis. I frequently have trouble hearing others while involved in normal conversations, and yet I am still able to hear - and focus on - seemingly less audible noises such as chewing sounds, scratching, breathing, etc.

I feel such a bond to all of you who suffer from this affliction. It is awful, isolating, and life-altering. If no one else understands us, at least we understand each other. Thanks to everyone for sharing their stories.

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julie
09/13/2011 17:08

hi there, i am very happy to hear this condition is REAL! i am a sufferer! i thought for years i just had bad nerves.
it started when i was young and it was money in pockets jingling. now it is gum chewing, money in pockets, feet shaking; as someone has their legs crossed. i am sure there are more but wanted to share a few of my triggers.
i sure hope there is more reaserch done to help others. my 13 year old daughter is showing signs as well. i hope for her it does not become severe.
thanks for sharing the stories, it sure helps!
Julie from Canada

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09/18/2011 11:28

Great! I always felt bad for having a go at my wife, the reason I got here was because its was doing my head in and I searched for it. To be honest I thought it was her, least I dont have to feel bad anymore. I never thought it was me or there would be an actual condition. I hate feeling so annoyed with my wife because I do love her so much.

I always thought I was being irritable which annoyed me because im usually very easy going. My brother smoking get on my noise too because he breathes out really loudly, he said to me that I always did too but I could never understand I always thoguht it was him. Today I feel a lot better!

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Erin
09/21/2011 13:11

Finally! I'm so relieved to have found an actual diagnosis for what I have experienced for the past 10 years! Since I was 10 years old my trigger sound has been breathing/snoring. On family trips I would have to sleep in the bathroom of hotels just to avoid hearing my family breathe and snore at night and when I told them that I HATE breathing noises they blew it off saying that I was just being dramatic. After a while I started having to use music with headphones to get through those kinds of nights. Unfortunately, the past 3 years I have started to get super irritated with chewing/smacking noises and I get filled with rage.

Once I found the Wikipedia website for Misophonia it led me here and I got to realize that there is a significant amount of people with Misophonia and its not just me who has this!

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Alice
09/27/2011 17:10

Today my work colleague was eating so loudly that I was forced to search 'why can't I stand the sound of people eating' into a search engine, as a distraction. Today I have learned some new information about myself, thank you for this site.

I don't know what she was eating as she was shielded by her monitor, I was visualising a huge apple, or was it a carrot, celery? The noise was so excruciating and the anger so immediate and blinding, she really is lucky that monitor is not implanted in her head.

I fantasise and visualise harming whoever is creating the noise, like a misunderstood teenager, my dark thoughts run riot around my brain. I am virtually 40 years old, and feel like I should be overcoming my childhood anxieties by now, but I feel they are escalating. I either focus 1000% on the noise and it's creator or I remove myself from the source.

Who invented Wasabi peas and decided to put them in convenient pots to take into the office? Why does a keyboard have to make that repetitive clatter. How many times have I screamed in my head, 'you are writing an email not hitting out a frickin' life story, press send, press send'. Nuts, Crisps, Crunchy Fruit, Raw Vegetables all likely culprits, but the cat cleaning himself? Come on really? He has actually woken me at night with his incessant licking, only to find himself turfed out the house so I can get back to sleep.

Leg shakers, pen tappers, pocket change janglers, come the revolution they will all be lined up, but front of the queue is reserved for the noisy and untidy eaters. It's usually Ok if I am eating too, and I usually try and start eating something to cover the noise whether hungry or not. At a meal time if I notice someone eating too quickly or heaven forbid with their mouth open, I find myself turning into the opposite of all those I despise. I will eat REALLY slowly, tidily, no cutlery scraping, with my lips tightly pressed and sitting bolt upright with a smugness that surprises me. I'm always the last to finish.

I watched a women eat a bag of raisins on the train this morning (no noise) but she was throwing them into her mouth at such a speed that I was repulsed and moved myself to another carriage.This is the first time I have put these feelings into words, I feel a slight release, but underneath I am still convinced I am an intolerant human being.

When I was a young teenager my mum told me a story of an old lady who ate alone at a huge dining table. The table used to be filled with happy friends and family sharing food together. The lady started to notice their annoying habits and one by one banned them from her table, until she spent her days living and eating alone. I'm trying to avoid turning into this old lady.

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Jo
05/21/2012 07:30

Alice, your comment about your colleague and the monitor being implanted in her head made me proper laugh. I have the same dark thoughts about my colleague. It started when she decided to change her eating habits and lose weight. Now she eats little and often throughout the day. Her lunch consists of apples and raw veggies. Every day I visualised myself screaming at her and smashing her face into her desk! I cope by putting my earphones in when she goes to get her lunch. She now also checks I'm prepared before she starts chomping. However, I cannot get her to stop chewing gum after her lunch. She does this for a good couple of hours, until her next mini-meal mid afternoon, which is also anything crunchy. AArrgghhhh!!!! I found that if I moved my computer screen to the other side of my desk and angle my microscope (science job) slightly differently so I can't see her jaw going up and down like a cow chewing the cud and I can't hear her cos I have my earphones in then I won't have to sew her face up.
Among other sounds, I also find the sound of my parents dog drinking out of his water bowl quite revolting. That's a 'remove myself' situation.

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Sydney James
10/16/2011 10:07

hi there, it's 4am here in Sydney and as I finally calm down from a misophonic episode that occurred before can I just tell you that this is the happiest day of my life, reading the understanding and support, being so right on about everything I've experienced my whole life but when I try and explain my sudden snap/frustration to a certain repetitive sound noone has EVER believed me - I'm 28 and my sense of hope, which ive lost, spent so many YEARS in absolute confusion and pain is slightly back - just not feeling alone and being able to show to friends and family is just invaluable, only 2 more hours until the people below me wake up and make the trigger sounds but now I can not freak out but think of how I'm not crazy !! thank you beyond the highest mountain of gratitude for running this site

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Leanne
11/08/2011 09:04

I am so happy I've found this website. I literally thought I was just a bit weird. I noticed that I was very sensitive to certain eating noises my dad made. He is a noisy eater anyway, but the worst thing is after he's eaten he will then persist to 'clean' his mouth with his tongue. The noise affects me so much; I feel enraged, like a want to smash something, and I've even cried over it. It's like a mixture of pure frustration and anger. I think I first noticed it bothered me when I was about 13/14. It's moved on to other noises too: sniffing, chewing gum, coughing, burping ect. It doesn't really bother me when women do it, or even younger males. It's got to the point where I won't eat with my parents, ever. I don't even like to be in my dads presence for too long incase he makes some noise I find offensive. I don't feel I can mention it as he's not the most understanding. I understand there is no cure, and although I've scared myself with how angry it's made me, I feel so relieved to know I'm not the only one affected.

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Sandy Kay
12/08/2011 19:16

What an eye opener & a relief & disappointment wrapped into one. I thot I was the only "one" meaning noise sensitive. Was hoping to find a cure as I read story after story but found none.
What prompted me to do a search was the awful noise of the basketball game my husband was watching on TV. That triggered it: going into the kitchen I grabbed cookies, chocolate chips, raisens, etc & started shoving them into my mouth. At the same time stiffling much wanted screaming. It has something to do with the nerve endings I'm sure because I can "feel" something go off inside during a noise episode. Just now our outside dog barked & my insides "jumped" while sitting here typing. There has to be a cure soon. My heart was saddened while watching the YouTube man talking of wanting to rip off his head. It's a trap. Yup, like living in hell. I'm heading to another site to do some research on healing of nerve endings. FYI: I take LOTS of vitamin B. Blessings & hope to all of "US".

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12/09/2011 11:00

Excellent site. I am in the same situation as most of the other sufferers who have written about their experiences on this site as I have had no idea there were other people with the same problem and I am now 40. I hated talking about the instant rage that would come to me when I heard certain noises as I could't even explian it myself, so I didn't expect anybody else to understand it. My Fiance, who has been fantastic and has tried to help me deal with the problem, found this site today and I am so relieved that I now have a place to start to try to understand it better by reading other peoples experiences. It is a cliche but it genuinely is like a huge weight that I have been carrying for 30 years has now lifted. It has always been eating noises, especially chewing gum that triggered the rage, but it now comes with keyboard noise and heels on our wooden floor. Now I know it is called Misophonia, I can try to get involved with speaking to other sufferers who genuinely understand the instant rage and need to get away when hearing certain sounds. Is there a forum that does not involve facebook as I am not a facebook user? Many Thanks

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Michael
12/23/2011 14:24

I'm not happy that I'm not the only one, no one deserves this curse. The only cure is a bullet through the head, god damn this is agonizing...

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Ellen Henderson
01/19/2012 00:14

I have had this since age 10 , I'ld always thort I was a crazy ( untill last night when I found this site) and that I'm an ass hole as I cant control how i feel about certain noises .It controls my life, I can't go to the movies , or sit with my family at dinner. Ive dumped boyfriends because they couldnt understand why I didn't want to be near them.(breathing eating the usual triggers) .I am copping with it but I've heard this gets worse with age I'm so not keen for that .we need a cure.

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Anna
01/30/2012 17:45

I don't think there are any words that can describe how thankful I am that this site exists.
I used to think I was crazy or totally alone, but finally having a name for the condition made me realize that Misophonia isn't freaky, it's just uncommon.
Now we can properly explain what is going on.

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Jen
01/30/2012 18:49

I can't tell you just how relieved I am. This whole thing started around the beginning of highschool, and it's been absolute insanity trying to concentrate in class. A lot of the time it's visual triggers (people tapping their feet), and sometimes there will be people clicking their pens or mumbling and humming. These drive me absolutely nuts, and it takes a great deal of willpower for me to just try and ignore it and pay attention. I've been driven to tears and, at home, when my parents will snore or mumble, I've just sat there holding my ears and ramming my head against something. It's hard for me to ask people to stop, and it's only gotten worse. This website has literally saved my life, and now I feel like I can do something and I feel like I'm not alone here. THANK YOU.

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Aimee
02/01/2012 15:17

This site is such an eye opener for me! I have been finding chewing noises agonisingly annoying for about 4 years, mainly my family which I hate as it creates a barrier especially at meal times as I tend to clench my fists and scratch my arms whenever I hear that noise. I'd try to explain to them why I'm doing what I'm doing but they just think im being attention seeking as its such a strange disorder to be afflicted with. Sometimes my Dad feels he has to leave the room when he starts to eat as he can see I'm uncomfortable even though Im just trying to deal with it in my own way. Just reading all the messages on this site is so interesting, to see the symptons people are describing are the same as the ones I have been dealing with for the past few years of my life. So thankyou for setting up this site, as I no longer feel an outcast :)

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Susanne
02/03/2012 14:34

Finally there's a name to it. Too bad there's not even a German Wikipedia entry. I might translate the English one... Now I wish I would've completed my psychology degree, there need to be some statistics and awareness.

Oh how do I hate some noises. Oh how often I had to move appartments because of them - basses, loud TVs... The newest reason for my next move is that I can hear my neighbours talk loudly - in their rooms, in the stairway and they're always slamming doors and leave the car running for minutes. And why need two people slam the car doors up to 14 times every time they get into/ out of the car? I'm going to lose my mind... I really want to live in a house somewhere in the woods, that sounds like heaven to me.

You know, I actually lost my last job because of this. There was this girl, she was eating two apples a day and a whole pack of rusk (about 10-12 pieces). RUSK. All the while smacking her lips and chewing with her mouth open. It was very quiet in the room, too, so I could hear her very well. :) She sat two meters away from me and I felt I was going insane, so every time she ate something I put a finger in the ear that pointed in her direction to prevent hearing the noises too badly. Long story short, I was called weird and other people shouldn't have to suffer from having to look at my behaviour (yeah, the rusk eating girl actually complained), so I was let go. I felt so, so relieved.

Anyway. Love the white noise tips, I had actually found out about this about a year ago when I couldn't use earplugs too often because they hurt my ears. Too bad there's nothing that helps against basses, as far as I know - not that this is a problem right now, but I'd like to be prepared. Any suggestions?

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Av
05/13/2012 15:48

I've suffered with misophonia for the past 9ish years, and I just wanted to thank you again for creating and managing this site. It is the best s\community I'v yet to encounter with the majority of the others being riddled with naysayers and people who believe that we can cure ourselves if we would just put our minds to it. I wish that the US's website was as good as this one, but it's growing. I just wanted to vent for a moment about Reader's Digest, which I used to love. Someone wrote in (they didn't know the term misophonia, but they described the symptoms) and the magazine replied telling them that they were "a little nuts" and maybe they had a little known disorder, misophonia, and that to have a better time at dinner they could try to focus on the conversation instead of the triggers, It really hurt my feelings. So thank you for understanding not only the hardships of the disorder, but also the emotional baggage that accompanies it. Thank you for the family and friends page especially. It was helpful to my mom, who no longer thinks that "everyone has quirks and I need to get over this."

Also, quick question. Has anyone with misophonia noticed a decrease in their reaction when their own children cause the trigger? I know it's far fetched, but I'm hoping that one day I will be able to sit at the table with my kids.

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Emmaly
05/16/2012 03:27

I have just read an article in the Daily Mail and thought "oh my goodness that sounds like me!" I just thought i was an irritable grouch! So i googled the term and found your site.

I know i have an issue with loud noises from my dyslexia, i have it quite mildly but when seeing a specialist he asked me do i have problems with loud noises near me like people whistling. YES! he said it was a common thing with dyslexics as the loud noise so over powers the brain that it affects your ability to see and then you get the rage as it is making it hard for you to process visually.

So not only am i having problems with LOUD people shouting to each other across desks when they only sit 2 feet apart because of my vision, people eating is enough to make me want to gun everyone down. I am particularly bad with mouth noises, slurping, eating with mouths open and chewing/swallowing sounds. It brings out rage in me that i know is completely irrational. Also another one that can bring me to a screaming fit is our beagle licking the kitchen floor. The poor creature get regularly yelled at for that.

I just put it down to my really good hearing (i can hear conversations from quite a distance, also i can still hear high pitch fox scarers in my 30's which normally adults can't hear) but having read people comments i think it might be more!

I will definitely see if i can find a sympathetic doctor to investigate this so i can make sense of it in my head and hopefully deal with it better.

Thank you so much for this site :)

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05/18/2012 20:58

hi,guys i just watched a show with this web site on it. some of family members do it to set me off then they giggle and call me crazy and when i don't do something they want they make the noise! it helps to right it down what i hate. when i tell my mom i am told to get over it so i will put it on here i hate flip flops,wet shoes,gum,chips,soup,gulping,breathing and touching hands oh and s,k,y and z

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hypomone
05/19/2012 07:38

20/20 did a report last night on this condition.. I sent a link to my sister. My dad who has past on, my sister and I have been suffering from this. The sad thing is that until last night I would just see myself as problematic. I would tell myself that this is a learned behavior and that there is something seriously wrong with our family. I know the incredible frustration and anger that it can cause. I beleive there are many different levels that each person has. I can simply get away from the situation and I regain composure. My poor little sister's life has been controlled or should I say out of control her whole life.
One of the great things about knowing that this is an acknowledged medical condition gives me a lot of relief. Maybe the people in my life can see it in a diferent light. My husband is compassionate about it, although I will usually just quietly slip away from the offensive noise. Sometimes he gets upset with me. I might make a face or get up for no reason and he knows that I am bugged. I sent him the information and maybe it will make a little more sense. thanks for the studies and info.

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Becca
05/21/2012 15:53

THANK GOODNESS!!!! All the years my family got mad at me because of my reaction to things. They made me feel like I was crazy or something. THANK YOU!!!! I now know it was not really my fault! I am 46 and I can recall this bothering me since I was about 6 or so. 40 years I have thought I was nuts. It was my sister who told me about it and all I could do was cry and say "I TOLD you it was something!" I am soooo relieved!

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05/21/2012 18:10

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05/21/2012 18:12

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